TO PROVIDE INFORMATION ABOUT THE BIRTH DEFECT OF SPINA BIFIDA AND ITS RELATED CONDITIONS AND SUPPORT TO INDIVIDUALS LIVING WITH IT THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SERVICE; TO FACILITATE RESEARCH INTO THE CAUSES, EFFECTS, AND TREATMENT OF SPINA BIFIDA; AND TO EDUCATE AND TRAIN THE PROFESSIONALS INVOLVED IN THE TREATMENT OF SPINA BIFIDA.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 3 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $139k
- Bonus
- —
- Other
- —
- Benefits
- $24k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President and CEO Median to 75th percentilevs Diseases, Disorders & Medical Disciplines peers in Virginia | $139k | — | — | $24k | $164k $174k |
Chief Financial Officer Median to 75th percentile | — | — | — | — | $138k $147k |
Chief Operating Officer 25th percentile to median | — | — | — | — | $115k $122k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 16 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at SPINA BIFIDA ASSOCIATION OF AMERICA equaled 8% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Held steady
from 2023
From $163k in 2023 to $164k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay held roughly steady from 2023 to 2024, while revenue fell 31%.
- Chief Financial Officer pay rose 2% from 2023 to 2024.
- Chief Operating Officer pay fell 15% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about SPINA BIFIDA ASSOCIATION OF AMERICA
What does the Chief Executive Officer of SPINA BIFIDA ASSOCIATION OF AMERICA earn?
In 2024, the Chief Executive Officer of SPINA BIFIDA ASSOCIATION OF AMERICA received $163,718 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Virginia, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at SPINA BIFIDA ASSOCIATION OF AMERICA compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Virginia, the 2024 pay of the Chief Executive Officer at SPINA BIFIDA ASSOCIATION OF AMERICA falls between the median and the 75th percentile. In 2024, the highest total compensation at SPINA BIFIDA ASSOCIATION OF AMERICA equaled 8% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are SPINA BIFIDA ASSOCIATION OF AMERICA's revenue and expenses?
In 2024, SPINA BIFIDA ASSOCIATION OF AMERICA reported $1.9M in total revenue and $2M in total expenses on its IRS Form 990.
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