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SPINA BIFIDA ASSOCIATION OF AMERICA

EIN: 58-1342181Alexandria, VAZIP: 22314
G55Z - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

TO PROVIDE INFORMATION ABOUT THE BIRTH DEFECT OF SPINA BIFIDA AND ITS RELATED CONDITIONS AND SUPPORT TO INDIVIDUALS LIVING WITH IT THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SERVICE; TO FACILITATE RESEARCH INTO THE CAUSES, EFFECTS, AND TREATMENT OF SPINA BIFIDA; AND TO EDUCATE AND TRAIN THE PROFESSIONALS INVOLVED IN THE TREATMENT OF SPINA BIFIDA.

Financials

YearRevenueExpensesAssets
2024$1.9M$0$714k
2023$2.8M$0$1M

Compensation

2024

SARA STRUWE
President and CEO
chief executive officer
$139,468
$0
$0
$163,718
GLENRAE BROWN
Chief Financial Officer
chief financial officer
$0
$0
$0
$138,276
MICHAEL WOOD
Chief Operating Officer
chief operating officer
$0
$0
$0
$115,329
ERIC TOBIN
Chair-elect
officer (unspecified)
$0
$0
$0
$0
JAMES ARMIJO
Director
board member
$0
$0
$0
$0
BRYAN VODICKA
Director
board member
$0
$0
$0
$0
TRACY DINUNZIO
Director
board member
$0
$0
$0
$0
NANCY GORE
Chair
board chair
$0
$0
$0
$0
MARIA BOURNIAS ESQ CPA
Immediate Past Chair
board chair
$0
$0
$0
$0
SHELIAH ROY
Director
board member
$0
$0
$0
$0
ANSHUL VARMA
Secretary/treasurer
officer (unspecified)
$0
$0
$0
$0
CHASE PHILLIPS
Director
board member
$0
$0
$0
$0
DAWNE WIDENER-BURROWS
Director
board member
$0
$0
$0
$0
MARIE THOMING PE
Member at Large
board member
$0
$0
$0
$0
KATHRYN ANN NAVARETTE SMITH RN MN
Director
board member
$0
$0
$0
$0
JOHN WIENER MD
Director
board member
$0
$0
$0
$0
ROBIN M BOWMAN MD
Director
board member
$0
$0
$0
$0
ELLEN FREMION MD FAAP FACP
Director
board member
$0
$0
$0
$0
MELISSA WIEGEL
Director
board member
$0
$0
$0
$0

2023

SARA STRUWE
President and CEO
chief executive officer
$141,598
$0
$0
$163,477
GLENRAE BROWN
Chief Financial Officer
chief financial officer
$0
$0
$0
$136,197
MICHAEL WOOD
Chief Operating Officer
chief operating officer
$0
$0
$0
$134,930
BRYAN VODICKA
Director
board member
$0
$0
$0
$0
JOHN WIENER MD
Director
board member
$0
$0
$0
$0
DAWNE WIDENER-BURROWS
Director
board member
$0
$0
$0
$0
ERIC TOBIN
Director
board member
$0
$0
$0
$0
KATHRYN ANN NAVARETTE SMITH RN MN
Director
board member
$0
$0
$0
$0
DOUG BURNS
Director
board member
$0
$0
$0
$0
ELLEN FREMION MD FAAP FACP
Director
board member
$0
$0
$0
$0
ANSHUL VARMA
Secretary/Treasurer
officer (unspecified)
$0
$0
$0
$0
TRACY DINUNZIO
Director
board member
$0
$0
$0
$0
ROBIN M BOWMAN MD
Director
board member
$0
$0
$0
$0
MICHAEL HARTY JR
Immediate Past Chair
board chair
$0
$0
$0
$0
NANCY GORE
Chair-Elect
officer (unspecified)
$0
$0
$0
$0
CHASE PHILLIPS
Director
board member
$0
$0
$0
$0
MARIA BOURNIAS ESQ CPA
Chair
board chair
$0
$0
$0
$0

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