The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 6 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $337k
- Bonus
- $50k
- Other
- —
- Benefits
- —
- Base
- $303k
- Bonus
- $60k
- Other
- —
- Benefits
- $18k
- Base
- $184k
- Bonus
- $25k
- Other
- —
- Benefits
- $11k
- Base
- $186k
- Bonus
- $9k
- Other
- —
- Benefits
- $14k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Ceo/board Member Officer (Unspecified) | $337k | $50k | — | — | $403k $428k |
Chief Innovation Officer Highest Compensated Employee Above 90th percentile | $303k | $60k | — | $18k | $402k $426k |
VP of Operations Board Vice President 75th to 90th percentile | $184k | $25k | — | $11k | $234k $248k |
VP of Science and Research Board Vice President Median to 75th percentile | $186k | $9k | — | $14k | $220k $234k |
Creative Director Highest Compensated Employee 25th percentile to median | — | — | — | — | $150k $159k |
Sr. Healthcare Data Analyst Highest Compensated Employee 25th percentile to median | — | — | — | — | $143k $152k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 6 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at The Familial Hypercholesterolemia Foundation equaled 5% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 11%
from 2023
From $452k in 2023 to $403k in 2024.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Highest Compensated Employee pay rose 11% from 2023 to 2024, while revenue rose 36%.
- Board Vice President pay rose 34% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about The Familial Hypercholesterolemia Foundation
What does the Highest Compensated Employee of The Familial Hypercholesterolemia Foundation earn?
In 2024, the Highest Compensated Employee of The Familial Hypercholesterolemia Foundation received $401,607 in total compensation. This pay is in the top 10% for Highest Compensated Employee roles among Diseases, Disorders & Medical Disciplines organizations nationwide: at least 9 in 10 comparable filings report less. Based on IRS Form 990 data.
How does Highest Compensated Employee pay at The Familial Hypercholesterolemia Foundation compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Highest Compensated Employee at The Familial Hypercholesterolemia Foundation falls in the top 10%. In 2024, the highest total compensation at The Familial Hypercholesterolemia Foundation equaled 5% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are The Familial Hypercholesterolemia Foundation's revenue and expenses?
In 2024, The Familial Hypercholesterolemia Foundation reported $8.9M in total revenue and $7.8M in total expenses on its IRS Form 990.
Compare any role, sector, or revenue band
Build your own benchmark from millions of reported positions.
Learn More About Nonprofit Compensation
Guides to help you understand and use this data
How to Look Up Nonprofit Salaries
Two approaches to finding executive compensation at any tax-exempt organization, from raw IRS filings to searchable databases.
Read moreAre Nonprofit Salaries Public?
What IRS Form 990 discloses about executive compensation, who has to report it, and how to look it up.
Read moreHow to Benchmark Nonprofit Executive Compensation
A step-by-step approach to using IRS Form 990 data for compensation benchmarking and peer comparison.
Read more