THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 4 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $149k
- Bonus
- —
- Other
- $90
- Benefits
- $13k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Registry Director Highest Compensated Employee 25th percentile to median | $149k | — | $90 | $13k | $167k $179k |
Director-aftd Member Repre Officer (Unspecified) | — | — | — | — | $30k $32k |
COO and Secretary Below 10th percentile | — | — | — | — | $29k $31k |
President Below 10th percentilevs Diseases, Disorders & Medical Disciplines peers in Pennsylvania | — | — | — | — | $18k $19k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 1 unpaid individual.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at THE FTD DISORDERS REGISTRY LLC equaled 19% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Up 63%
from 2023
From $102k in 2023 to $167k in 2024.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Highest Compensated Employee pay rose 63% from 2023 to 2024, while revenue fell 16%.
- Chief Operating Officer pay fell 7% from 2023 to 2024.
- Chief Executive Officer pay rose 14% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about THE FTD DISORDERS REGISTRY LLC
What does the Highest Compensated Employee of THE FTD DISORDERS REGISTRY LLC earn?
In 2024, the Highest Compensated Employee of THE FTD DISORDERS REGISTRY LLC received $166,700 in total compensation. This pay is below the median (the midpoint) for Highest Compensated Employee roles among Diseases, Disorders & Medical Disciplines organizations nationwide, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Highest Compensated Employee pay at THE FTD DISORDERS REGISTRY LLC compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Highest Compensated Employee at THE FTD DISORDERS REGISTRY LLC falls between the 25th percentile and the median. In 2024, the highest total compensation at THE FTD DISORDERS REGISTRY LLC equaled 19% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are THE FTD DISORDERS REGISTRY LLC's revenue and expenses?
In 2024, THE FTD DISORDERS REGISTRY LLC reported $871k in total revenue and $893k in total expenses on its IRS Form 990.
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