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The Myelodysplastic Syndromes Foundation

New York, New York·EIN 22-3283911·NTEE G30 · Diseases, Disorders & Medical Disciplines·501(c)(3)·Filing year 2024

The Myelodysplastic Syndromes Foundation's highest-paid officer, the Executive Director (through 1/25), was reported at $155,674 for 2024 (IRS Form 990), including base pay and other compensation. Reported CEO pay ranged from $86,323 to $155,674 between 2023 and 2024.

Total revenue
$2M
Total assets
$3.8M
Total expenses
$3M
Reported officers
10

THE MYELODYSPLASTIC SYNDROMES FOUNDATION (MDSF) IS A GLOBAL NONPROFIT ORGANIZATION DEDICATED TO SUPPORTING PATIENTS AND CAREGIVERS AFFECTED BY MYELODYSPLASTIC SYNDROMES (MDS), A GROUP OF RARE AND LIFE-THREATENING BONE MARROW DISORDERS, AND THE HEALTHCARE PROFESSIONALS WHO CARE FOR THEM.SINCE OUR FOUNDING MORE THAN 30 YEARS AGO, WE HAVE REMAINED STEADFAST IN OUR MISSION TO ADVANCE RESEARCH, PROVIDE CRITICAL EDUCATION AND SUPPORT SERVICES, AND IMPROVE TREATMENT OPTIONS FOR THOSE IMPACTED BY MDS.

Executive compensation, broken down

Form 990 · Part VII & Schedule J · 4 reported individuals · Filing year 2024

Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in New York.

Executive Director (through 1/25)
Median to 75th percentile
$156k
Base
$151k
Bonus
—
Other
—
Benefits
—
Patient Care Director
Highest Compensated Employee
10th to 25th percentile
$138k
Development Director
25th percentile to medianvs Diseases, Disorders & Medical Disciplines peers nationwide
$128k
Secretary
Officer (Unspecified)
$96k

Plus 6 unpaid individuals.

Browse compensation in Diseases, Disorders & Medical Disciplines →

Top pay as a share of expenses

In 2024, the highest total compensation at The Myelodysplastic Syndromes Foundation equaled 5% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

This organization (2024)
5%
Sector median
10%
Middle half of sector
4% to 22%

Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.

Up 80%
from 2023

From $86k in 2023 to $156k in 2024.

$86k
2023
$156k
2024
Pay for the position

Chief Executive Officer pay rose 80% from 2023 to 2024, while revenue fell 22%.

$86k in 2023 to $156k in 2024.

Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

Common questions about The Myelodysplastic Syndromes Foundation

What does the Chief Executive Officer of The Myelodysplastic Syndromes Foundation earn?

In 2024, the Chief Executive Officer of The Myelodysplastic Syndromes Foundation received $155,674 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in New York, within the top half of comparable filings. Based on IRS Form 990 data.

How does Chief Executive Officer pay at The Myelodysplastic Syndromes Foundation compare with similar nonprofits?

Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in New York, the 2024 pay of the Chief Executive Officer at The Myelodysplastic Syndromes Foundation falls between the median and the 75th percentile. In 2024, the highest total compensation at The Myelodysplastic Syndromes Foundation equaled 5% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

What are The Myelodysplastic Syndromes Foundation's revenue and expenses?

In 2024, The Myelodysplastic Syndromes Foundation reported $2M in total revenue and $3M in total expenses on its IRS Form 990.

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