THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1-RELATED DISEASES THROUGH SUPPORTING RESEARCH, PROVIDING MEDICAL PROFESSIONAL EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.
Executive compensation
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
Executive Director 10th to 25th percentile | $41k $46k |
Business Manager 10th to 25th percentilevs all sectors nationwide | $22k $24k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at THE RYR-1 FOUNDATION equaled 12% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about THE RYR-1 FOUNDATION
What does the Chief Executive Officer of THE RYR-1 FOUNDATION earn?
In 2023, the Chief Executive Officer of THE RYR-1 FOUNDATION received $41,150 in total compensation. This pay is in the bottom quarter for Chief Executive Officer roles among Medical Research organizations nationwide, above the lowest 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at THE RYR-1 FOUNDATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2023 pay of the Chief Executive Officer at THE RYR-1 FOUNDATION falls between the 10th and 25th percentiles. In 2023, the highest total compensation at THE RYR-1 FOUNDATION equaled 12% of the organization's total expenses. The median for medical research organizations is 10%.
What are THE RYR-1 FOUNDATION's revenue and expenses?
In 2023, THE RYR-1 FOUNDATION reported $600k in total revenue and $354k in total expenses on its IRS Form 990.
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