Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Health Care organizations in Minnesota.
| Position | Total |
|---|---|
Executive Director Median to 75th percentile | $150k $160k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Minneapolis-St.Paul-Bloomington, MN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 13 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY equaled 37% of the organization's total expenses. The median for health care organizations is 4%.
Based on 13,830 health care organizations, each measured at its most recent filing year with reported expenses and compensation.
Up 18%
from 2023
From $127k in 2023 to $150k in 2024.
Estimated with Minneapolis-St.Paul-Bloomington, MN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 18% from 2023 to 2024, while revenue rose 35%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY
What does the Chief Executive Officer of THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY earn?
In 2024, the Chief Executive Officer of THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY received $150,000 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Health Care organizations in Minnesota, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY compare with similar nonprofits?
Compared with the same role at Health Care organizations in Minnesota, the 2024 pay of the Chief Executive Officer at THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY falls between the median and the 75th percentile. In 2024, the highest total compensation at THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY equaled 37% of the organization's total expenses. The median for health care organizations is 4%.
What are THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY's revenue and expenses?
In 2024, THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY reported $284k in total revenue and $411k in total expenses on its IRS Form 990.
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