MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
President Median to 75th percentile | $131k $139k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 5 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at ALAGILLE SYNDROME ALLIANCE equaled 26% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 18%
from 2023
From $111k in 2023 to $131k in 2024.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 18% from 2023 to 2024, while revenue rose 13%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about ALAGILLE SYNDROME ALLIANCE
What does the Chief Executive Officer of ALAGILLE SYNDROME ALLIANCE earn?
In 2024, the Chief Executive Officer of ALAGILLE SYNDROME ALLIANCE received $130,744 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at ALAGILLE SYNDROME ALLIANCE compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Executive Officer at ALAGILLE SYNDROME ALLIANCE falls between the median and the 75th percentile. In 2024, the highest total compensation at ALAGILLE SYNDROME ALLIANCE equaled 26% of the organization's total expenses. The median for medical research organizations is 10%.
What are ALAGILLE SYNDROME ALLIANCE's revenue and expenses?
In 2024, ALAGILLE SYNDROME ALLIANCE reported $648k in total revenue and $513k in total expenses on its IRS Form 990.
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