THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 13 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $491k
- Bonus
- —
- Other
- —
- Benefits
- $30k
- Base
- $271k
- Bonus
- —
- Other
- —
- Benefits
- $58k
- Base
- $288k
- Bonus
- —
- Other
- —
- Benefits
- $15k
- Base
- $232k
- Bonus
- —
- Other
- —
- Benefits
- $58k
- Base
- $246k
- Bonus
- —
- Other
- —
- Benefits
- $29k
- Base
- $265k
- Bonus
- —
- Other
- —
- Benefits
- $2k
- Base
- $244k
- Bonus
- —
- Other
- —
- Benefits
- $13k
- Base
- $250k
- Bonus
- —
- Other
- —
- Benefits
- $2k
- Base
- $219k
- Bonus
- —
- Other
- —
- Benefits
- $30k
- Base
- $183k
- Bonus
- —
- Other
- $54k
- Benefits
- $10k
- Base
- $221k
- Bonus
- —
- Other
- —
- Benefits
- $17k
- Base
- $231k
- Bonus
- —
- Other
- —
- Benefits
- $2k
- Base
- $73k
- Bonus
- —
- Other
- $122k
- Benefits
- $28k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President and CEO Above 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Virginia | $491k | — | — | $30k | $546k $580k |
Chief Development Officer Above 90th percentile | $271k | — | — | $58k | $352k $374k |
Chief Financial Officer Above 90th percentile | $288k | — | — | $15k | $324k $344k |
Senior Vice President Research Senior Vice President Median to 75th percentilevs all sectors nationwide | $232k | — | — | $58k | $308k $327k |
SVP Strategic Alliances & Governance Senior Vice President Median to 75th percentilevs all sectors nationwide | $246k | — | — | $29k | $293k $311k |
Chief Information & Technology Officer Chief Information Officer 75th to 90th percentile | $265k | — | — | $2k | $291k $309k |
Chief Community Engagement Officer Key Employee Median to 75th percentile | $244k | — | — | $13k | $276k $293k |
Chief Marketing & Communications Officer Key Employee Median to 75th percentile | $250k | — | — | $2k | $266k $282k |
Vice President Mission Acceleration Board Vice President 75th to 90th percentile | $219k | — | — | $30k | $265k $281k |
Senior Vice President Organizational Change Senior Vice President Median to 75th percentilevs all sectors nationwide | $183k | — | $54k | $10k | $256k $272k |
Senior Vice President Care Services Senior Vice President Median to 75th percentilevs all sectors nationwide | $221k | — | — | $17k | $254k $270k |
Chief Strategy Officer Key Employee Median to 75th percentile | $231k | — | — | $2k | $249k $265k |
Chief Mission Officer Key Employee Median to 75th percentile | $73k | — | $122k | $28k | $232k $246k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 30 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at AMYOTROPHIC LATERAL SCLEROSIS ASSN equaled 0.7% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 3%
from 2023
From $529k in 2023 to $546k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 3% from 2023 to 2024, while revenue fell 46%.
- Chief Financial Officer pay rose 4% from 2023 to 2024.
- Senior Vice President pay rose 6% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about AMYOTROPHIC LATERAL SCLEROSIS ASSN
What does the Chief Executive Officer of AMYOTROPHIC LATERAL SCLEROSIS ASSN earn?
In 2024, the Chief Executive Officer of AMYOTROPHIC LATERAL SCLEROSIS ASSN received $546,268 in total compensation. This pay is in the top 10% for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Virginia: at least 9 in 10 comparable filings report less. Based on IRS Form 990 data.
How does Chief Executive Officer pay at AMYOTROPHIC LATERAL SCLEROSIS ASSN compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Virginia, the 2024 pay of the Chief Executive Officer at AMYOTROPHIC LATERAL SCLEROSIS ASSN falls in the top 10%. In 2024, the highest total compensation at AMYOTROPHIC LATERAL SCLEROSIS ASSN equaled 0.7% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are AMYOTROPHIC LATERAL SCLEROSIS ASSN's revenue and expenses?
In 2024, AMYOTROPHIC LATERAL SCLEROSIS ASSN reported $68.6M in total revenue and $82.2M in total expenses on its IRS Form 990.
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