CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 5 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $300k
- Bonus
- —
- Other
- —
- Benefits
- $2k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Executive Officer 75th to 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Pennsylvania | $300k | — | — | $2k | $311k $335k |
Chief Engagement and Gift Officer Highest Compensated Employee 25th percentile to median | — | — | — | — | $146k $157k |
Chief Research Officer Highest Compensated Employee 25th percentile to median | — | — | — | — | $132k $142k |
Director of Community Outreach Highest Compensated Employee Below 10th percentile | — | — | — | — | $105k $113k |
Direcot of Finance and Admin Officer (Unspecified) | — | — | — | — | $102k $110k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 21 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at CHARCOT-MARIE-TOOTH ASSOCIATION equaled 5% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 42%
from 2023
From $220k in 2023 to $311k in 2024.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 105% from 2023 to 2024, while revenue held roughly steady.
- Highest Compensated Employee pay fell 34% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CHARCOT-MARIE-TOOTH ASSOCIATION
What does the Chief Executive Officer of CHARCOT-MARIE-TOOTH ASSOCIATION earn?
In 2024, the Chief Executive Officer of CHARCOT-MARIE-TOOTH ASSOCIATION received $311,016 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Pennsylvania, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CHARCOT-MARIE-TOOTH ASSOCIATION compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Pennsylvania, the 2024 pay of the Chief Executive Officer at CHARCOT-MARIE-TOOTH ASSOCIATION falls between the 75th and 90th percentiles. In 2024, the highest total compensation at CHARCOT-MARIE-TOOTH ASSOCIATION equaled 5% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are CHARCOT-MARIE-TOOTH ASSOCIATION's revenue and expenses?
In 2024, CHARCOT-MARIE-TOOTH ASSOCIATION reported $5.8M in total revenue and $5.8M in total expenses on its IRS Form 990.
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