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Filing year 2023

CYSTIC FIBROSIS FOUNDATION

Bethesda, Maryland·EIN 13-1930701·NTEE G200 · Diseases, Disorders & Medical Disciplines·501(c)(3)
Total revenue
$292M
Total assets
$4.9B
Total expenses
$443.4M
Reported officers
28

Executive compensation, broken down

Form 990 · Part VII & Schedule J · 13 reported individuals · Filing year 2023

Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.

Chief Investment Officer
Key Employee
Above 90th percentile
$2.8M
$3.1M
Base
$732k
Bonus
$1.7M
Other
$331k
Benefits
$42k
President & CEO
Above 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Maryland
$1.5M
$1.6M
Base
$678k
Bonus
$384k
Other
$310k
Benefits
$54k
Managing Director, Investments
Highest Compensated Employee
Above 90th percentile
$1.4M
$1.5M
Base
$463k
Bonus
$650k
Other
$2k
Benefits
$18k
Managing Director, Investments
Highest Compensated Employee
Above 90th percentile
$1.3M
$1.4M
Base
$423k
Bonus
$844k
Other
$2k
Benefits
$16k
Managing Director, Investments
Highest Compensated Employee
Above 90th percentile
$1.2M
$1.3M
Base
$427k
Bonus
$522k
Other
$1k
Benefits
$54k
EVP & Chief Medical Officer
Above 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Maryland
$778k
$853k
Base
$561k
Bonus
$166k
Other
$15k
Benefits
Svp, Clinical Research
Senior Vice President
Above 90th percentilevs all sectors nationwide
$749k
$821k
Base
$499k
Bonus
$153k
Other
$7k
Benefits
$53k
Evp, Chief Oper/fin Officer
Above 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Maryland
$743k
$814k
Base
$577k
Bonus
$115k
Other
$1k
Benefits
$2k
Managing Director, Investments
Highest Compensated Employee
Above 90th percentile
$732k
$802k
Base
$378k
Bonus
$161k
Other
$2k
Benefits
$53k
VP Clinical Affairs
Board Vice President
Above 90th percentile
$643k
$705k
Base
$423k
Bonus
$88k
Other
$7k
Benefits
$58k
Svp, Chief Legal Officer
Senior Vice President
75th to 90th percentilevs all sectors nationwide
$577k
$632k
Base
$448k
Bonus
$46k
Other
$1k
Benefits
$34k
EVP & Chief Scientific Officer
75th to 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Maryland
$279k
$306k
Base
$144k
Bonus
$99k
Other
$34k
Benefits
Former CEO & Strategic Advisor
Former Officer/director/trustee
75th to 90th percentile
$257k
$282k
Base
$45k
Bonus
$63k
Other
$134k
Benefits
$6k

Teal figures restate each filed amount in 2026 dollars.

Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 15 unpaid individuals.

Browse compensation in Diseases, Disorders & Medical Disciplines

Pay in context

Top pay as a share of expenses

In 2023, the highest total compensation at CYSTIC FIBROSIS FOUNDATION equaled 0.6% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

This organization (2023)
0.6%
Sector median
10%
Middle half of sector
4% to 22%

Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

FAQ

Common questions about CYSTIC FIBROSIS FOUNDATION

What does the Key Employee of CYSTIC FIBROSIS FOUNDATION earn?

In 2023, the Key Employee of CYSTIC FIBROSIS FOUNDATION received $2,822,596 in total compensation. This pay is in the top 10% for Key Employee roles among Diseases, Disorders & Medical Disciplines organizations nationwide: at least 9 in 10 comparable filings report less. Based on IRS Form 990 data.

How does Key Employee pay at CYSTIC FIBROSIS FOUNDATION compare with similar nonprofits?

Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2023 pay of the Key Employee at CYSTIC FIBROSIS FOUNDATION falls in the top 10%. In 2023, the highest total compensation at CYSTIC FIBROSIS FOUNDATION equaled 0.6% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

What are CYSTIC FIBROSIS FOUNDATION's revenue and expenses?

In 2023, CYSTIC FIBROSIS FOUNDATION reported $292M in total revenue and $443.4M in total expenses on its IRS Form 990.

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