WE WORK COLLABORATIVELY TO ACCELERATE THE PACE OF SCIENCE ON SCN8A AND RELATED DISORDERS IN ORDER TO BRING HOPE AND IMPROVED OUTCOMES FOR ALL THOSE LIVING WITH RARE EPILEPSIES AND THEIR FAMILIES.
Executive compensation
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
| Position | Total |
|---|---|
Executive Dir. Officer (Unspecified) | $100k $110k |
Chairman Board Chair 10th to 25th percentile | $11k $12k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 8 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2023, the highest total compensation at Decoding Developmental Epilepsies DBA International SCN8A Alliance equaled 32% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about Decoding Developmental Epilepsies DBA International SCN8A Alliance
What does the Board Chair of Decoding Developmental Epilepsies DBA International SCN8A Alliance earn?
In 2023, the Board Chair of Decoding Developmental Epilepsies DBA International SCN8A Alliance received $11,005 in total compensation. This pay is in the bottom quarter for Board Chair roles among Diseases, Disorders & Medical Disciplines organizations nationwide, above the lowest 10% of comparable filings. Based on IRS Form 990 data.
How does Board Chair pay at Decoding Developmental Epilepsies DBA International SCN8A Alliance compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2023 pay of the Board Chair at Decoding Developmental Epilepsies DBA International SCN8A Alliance falls between the 10th and 25th percentiles. In 2023, the highest total compensation at Decoding Developmental Epilepsies DBA International SCN8A Alliance equaled 32% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are Decoding Developmental Epilepsies DBA International SCN8A Alliance's revenue and expenses?
In 2023, Decoding Developmental Epilepsies DBA International SCN8A Alliance reported $586k in total revenue and $311k in total expenses on its IRS Form 990.
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