THE FOUNDATION HAS THREE MAIN PURPOSES: (1)TO ADVANCE DYSTONIA RESEARCH BY AWARDING GRANTS TO BASIC, TRANSLATIONAL, AND CLINICAL INVESTIGATORS AND TO MEDICAL/SCIENTIFIC INSTITUTIONS COMMITTED TO FINDING THE CAUSE AND CURE FOR ALL FORMS OF DYSTONIA; (2)TO PROMOTE DYSTONIA AWARENESS BY SPONSORING WORKSHOPS AND SYMPOSIUMS FOR MEDICAL PROFESSIONALS AND PATIENTS, BY EDUCATING MEMBERS OF CONGRESS ABOUT DYSTONIA AND THE NEEDS OF THE DYSTONIA COMMUNITY, BY ADVOCATING FOR THOSE AFFECTED BY DYSTONIA AND THEIR FAMILIES, AND BY PRODUCING AND DISTRIBUTING EDUCATIONAL MATERIALS, BOTH PRINTED AND ELECTRONIC; AND (3)TO SPONSOR DYSTONIA PATIENT AND FAMILY SUPPORT GROUPS AND EDUCATION PROGRAMS INCLUDING THE CREATION AND PROMOTION OF VIRTUAL EDUCATION MEETINGS AND ELECTRONIC SOCIAL NETWORKS FOR DYSTONIA-AFFECTED PERSONS AND FAMILIES WHO ARE UNABLE TO ATTEND MEETINGS.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 3 reported individuals · Filing year 2024
- Base
- $184k
- Bonus
- —
- Other
- —
- Benefits
- $9k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Sec/exec Dir Officer (Unspecified) | $184k | — | — | $9k | $200k $214k |
Dir Development Unclassified | — | — | — | — | $130k $139k |
Dir Finance Unclassified | — | — | — | — | $124k $133k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 27 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at DYSTONIA MEDICAL RESEARCH FOUNDATION equaled 7% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 2%
from 2023
From $205k in 2023 to $200k in 2024.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about DYSTONIA MEDICAL RESEARCH FOUNDATION
What are DYSTONIA MEDICAL RESEARCH FOUNDATION's revenue and expenses?
In 2024, DYSTONIA MEDICAL RESEARCH FOUNDATION reported $3.2M in total revenue and $3M in total expenses on its IRS Form 990.
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