To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 6 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $187k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $187k
- Bonus
- —
- Other
- —
- Benefits
- $2k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
VP of Research Board Vice President 25th percentile to median | $187k | — | — | — | $195k $209k |
Chief Executive Officer Median to 75th percentile | $187k | — | — | $2k | $189k $204k |
Marketing & Communication Director Director (Operational) 25th percentile to median | — | — | — | — | $120k $129k |
Development Director 10th to 25th percentile | — | — | — | — | $119k $128k |
VP of Clinical Development Board Vice President 10th to 25th percentile | — | — | — | — | $110k $118k |
Interim Chief Executive Officer Below 10th percentile | — | — | — | — | $5k $6k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 11 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at International Rett Syndrome Foundation equaled 4% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 12%
from 2023
From $173k in 2023 to $195k in 2024.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Board Vice President pay rose 50% from 2023 to 2024, while revenue fell 1%.
- Chief Executive Officer pay rose 11% from 2023 to 2024.
- Director (Operational) pay rose 8% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about International Rett Syndrome Foundation
What does the Board Vice President of International Rett Syndrome Foundation earn?
In 2024, the Board Vice President of International Rett Syndrome Foundation received $194,684 in total compensation. This pay is below the median (the midpoint) for Board Vice President roles among Medical Research organizations nationwide, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Board Vice President pay at International Rett Syndrome Foundation compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Board Vice President at International Rett Syndrome Foundation falls between the 25th percentile and the median. In 2024, the highest total compensation at International Rett Syndrome Foundation equaled 4% of the organization's total expenses. The median for medical research organizations is 10%.
What are International Rett Syndrome Foundation's revenue and expenses?
In 2024, International Rett Syndrome Foundation reported $4.8M in total revenue and $5.5M in total expenses on its IRS Form 990.
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