To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Executive compensation, broken down
Form 990 · Schedule J · 6 reported individuals · Filing year 2024
- Base
- $187k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $187k
- Bonus
- —
- Other
- —
- Benefits
- $2k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
VP of Research vice president | $187k | — | — | — | $195k $209k |
Chief Executive Officer | $187k | — | — | $2k | $189k $204k |
Marketing & Communication Director director (operational) | — | — | — | — | $120k $129k |
Development Director | — | — | — | — | $119k $128k |
VP of Clinical Development vice president | — | — | — | — | $110k $118k |
Interim Chief Executive Officer | — | — | — | — | $5k $6k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 11 unpaid individuals.
Up 12%
from 2023
From $173k in 2023 to $195k in 2024.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Revenue and expenses over time
International Rett Syndrome Foundation reported revenue and expenses across 2 filing years.
What Medical Research executives earn
Comparable medical research organizations nationwide pay their highest-earning executive a median of $114,840.
These are medical research sector-wide figures, not this organization's reported pay. Based on 283 organizations across 283 filings (2021 – 2023).
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