LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC'S (LDRTC) MISSION IS TO PROVIDE RESEARCH TO UNRAVEL UNDERLYING DISEASE-CAUSING MECHANISMS, DISCOVER NEW BIOMARKERS AND EXPLORE NEW THERAPEUTIC PATHWAYS AND TREATMENT OPTIONS. FURTHER, LDRTC WORKS TO EDUCATE PATIENTS, FAMILIES, HEALTHCARE PROVIDERS AND RESEARCHERS IN THE FIELD. FINALLY, IT PROVIDES TREATMENT AND CLINICAL CARE TO PERSONS SUFFERING FROM LYSOSOMAL AND OTHER RARE DISEASES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 5 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $318k
- Bonus
- —
- Other
- —
- Benefits
- $9k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President / Founder 75th to 90th percentile | $318k | — | — | $9k | $327k $348k |
Dir. of Translational Research Highest Compensated Employee 10th to 25th percentile | — | — | — | — | $136k $144k |
Director / Manager Board Member 75th to 90th percentile | — | — | — | — | $127k $135k |
Treasurer / Operations Director 10th to 25th percentile | — | — | — | — | $116k $123k |
Secretary / LPN Officer (Unspecified) | — | — | — | — | $88k $94k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Top pay as a share of expenses
In 2024, the highest total compensation at LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC equaled 9% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Fell 14%
over 3 years
From $381k in 2021 to $327k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 14% from 2021 to 2024, while revenue rose 66%.
- Highest Compensated Employee pay rose 21% from 2023 to 2024.
- Board Member pay rose 36% from 2021 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2021 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC
What does the Chief Executive Officer of LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC earn?
In 2024, the Chief Executive Officer of LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC received $327,309 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Medical Research organizations nationwide, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Executive Officer at LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC falls between the 75th and 90th percentiles. In 2024, the highest total compensation at LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC equaled 9% of the organization's total expenses. The median for medical research organizations is 10%.
What are LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC's revenue and expenses?
In 2024, LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC reported $4.4M in total revenue and $3.7M in total expenses on its IRS Form 990.
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