The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Philanthropy, Voluntarism & Grantmaking organizations in Colorado.
| Position | Total |
|---|---|
Executive Director 25th percentile to median | $90k $97k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Denver-Aurora-Lakewood, CO metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 10 unpaid individuals.
Browse compensation in Philanthropy, Voluntarism & Grantmaking →
Top pay as a share of expenses
In 2024, the highest total compensation at Moebius Syndrome Foundation equaled 32% of the organization's total expenses. The median for philanthropy, voluntarism & grantmaking organizations is 15%.
Based on 35,946 philanthropy, voluntarism & grantmaking organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 2%
from 2023
From $91k in 2023 to $90k in 2024.
Estimated with Denver-Aurora-Lakewood, CO metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 2% from 2023 to 2024, while revenue fell 26%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about Moebius Syndrome Foundation
What does the Chief Executive Officer of Moebius Syndrome Foundation earn?
In 2024, the Chief Executive Officer of Moebius Syndrome Foundation received $90,018 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Philanthropy, Voluntarism & Grantmaking organizations in Colorado, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at Moebius Syndrome Foundation compare with similar nonprofits?
Compared with the same role at Philanthropy, Voluntarism & Grantmaking organizations in Colorado, the 2024 pay of the Chief Executive Officer at Moebius Syndrome Foundation falls between the 25th percentile and the median. In 2024, the highest total compensation at Moebius Syndrome Foundation equaled 32% of the organization's total expenses. The median for philanthropy, voluntarism & grantmaking organizations is 15%.
What are Moebius Syndrome Foundation's revenue and expenses?
In 2024, Moebius Syndrome Foundation reported $338k in total revenue and $283k in total expenses on its IRS Form 990.
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