THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE TO PROMOTE THE INTERESTS OF PEOPLE WITH DOWN SYNDROME, TO EDUCATE THROUGH AWARENESS, TO ADVOCATE AND ENSURE THEIR RIGHTS ARE RECOGNIZED AND PROTECTED, TO EMPOWER, AND TO INSPIRE AND RESHAPE THE WAY PEOPLE UNDERSTAND AND EXPERIENCE DOWN SYNDROME.THE VISION OF THE NDSC IS A WORLD WITH EQUAL RIGHTS AND OPPORTUNITIES FOR PEOPLE WITH DOWN SYNDROME.
Executive compensation
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in Ohio.
| Position | Total |
|---|---|
Policy/advocacy Co-director Highest Compensated Employee 10th to 25th percentilevs Diseases, Disorders & Medical Disciplines peers nationwide | $112k $121k |
Executive Director Median to 75th percentile | $95k $102k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 15 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at NATIONAL DOWN SYNDROME CONGRESS equaled 7% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Fell 40%
over 2 years
From $186k in 2022 to $112k in 2024.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 49% from 2022 to 2024, while revenue rose 24%.
Pay for the position itself, not any one person. The officeholder may have changed between 2022 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about NATIONAL DOWN SYNDROME CONGRESS
What does the Highest Compensated Employee of NATIONAL DOWN SYNDROME CONGRESS earn?
In 2024, the Highest Compensated Employee of NATIONAL DOWN SYNDROME CONGRESS received $112,280 in total compensation. This pay is in the bottom quarter for Highest Compensated Employee roles among Diseases, Disorders & Medical Disciplines organizations nationwide, above the lowest 10% of comparable filings. Based on IRS Form 990 data.
How does Highest Compensated Employee pay at NATIONAL DOWN SYNDROME CONGRESS compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Highest Compensated Employee at NATIONAL DOWN SYNDROME CONGRESS falls between the 10th and 25th percentiles. In 2024, the highest total compensation at NATIONAL DOWN SYNDROME CONGRESS equaled 7% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are NATIONAL DOWN SYNDROME CONGRESS's revenue and expenses?
In 2024, NATIONAL DOWN SYNDROME CONGRESS reported $1.7M in total revenue and $1.7M in total expenses on its IRS Form 990.
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