OUR MISSION IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PKU, PURSUE A CURE BY EXPANDING RESEARCH AND PROVIDE EDUCATION AND SUPPORT TO INDIVIDUALS LIVING WITH PKU AND THEIR CAREGIVERS.
Executive compensation
Form 990 · Part VII & Schedule J · 3 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
Director of Development 25th percentile to median | $143k $152k |
Executive Director 25th percentile to median | $120k $127k |
Executive Director 25th percentile to median | $97k $103k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at NATIONAL PKU ALLIANCE INC equaled 7% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 38%
from 2023
From $231k in 2023 to $143k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Development Officer pay rose 1% from 2023 to 2024, while revenue rose 96%.
- Chief Executive Officer pay fell 48% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about NATIONAL PKU ALLIANCE INC
What does the Chief Development Officer of NATIONAL PKU ALLIANCE INC earn?
In 2024, the Chief Development Officer of NATIONAL PKU ALLIANCE INC received $143,111 in total compensation. This pay is below the median (the midpoint) for Chief Development Officer roles among Medical Research organizations nationwide, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Development Officer pay at NATIONAL PKU ALLIANCE INC compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Development Officer at NATIONAL PKU ALLIANCE INC falls between the 25th percentile and the median. In 2024, the highest total compensation at NATIONAL PKU ALLIANCE INC equaled 7% of the organization's total expenses. The median for medical research organizations is 10%.
What are NATIONAL PKU ALLIANCE INC's revenue and expenses?
In 2024, NATIONAL PKU ALLIANCE INC reported $2.6M in total revenue and $2.1M in total expenses on its IRS Form 990.
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