In our drive to find a cure for NBIA we provide support to families educate the public and accelerate research with collaborators from around the world.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $64k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $23k
- Bonus
- —
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Former President Former Officer/director/trustee 25th percentile to medianvs all sectors nationwide | $64k | — | — | — | $64k $68k |
President 10th to 25th percentile | $23k | — | — | — | $23k $25k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Houston-The Woodlands-Sugar Land, TX metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 9 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at Nbia Disorders Association equaled 22% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 2%
from 2022
From $63k in 2022 to $64k in 2023.
Estimated with Houston-The Woodlands-Sugar Land, TX metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 63% from 2022 to 2023, while revenue fell 55%.
Pay for the position itself, not any one person. The officeholder may have changed between 2022 and 2023.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about Nbia Disorders Association
What does the Former Officer/director/trustee of Nbia Disorders Association earn?
In 2023, the Former Officer/director/trustee of Nbia Disorders Association received $63,959 in total compensation. This pay is below the median (the midpoint) for Former Officer/director/trustee roles among nonprofits nationwide, across all sectors, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Former Officer/director/trustee pay at Nbia Disorders Association compare with similar nonprofits?
Compared with the same role at nonprofits nationwide, across all sectors, the 2023 pay of the Former Officer/director/trustee at Nbia Disorders Association falls between the 25th percentile and the median. In 2023, the highest total compensation at Nbia Disorders Association equaled 22% of the organization's total expenses. The median for medical research organizations is 10%.
What are Nbia Disorders Association's revenue and expenses?
In 2023, Nbia Disorders Association reported $241k in total revenue and $290k in total expenses on its IRS Form 990.
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