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SIEGEL RARE NEUROIMMUNE ASSOCIATION

EIN: 91-1780467Powell, OHZIP: 43065
G99 - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEUROIMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISORDERS AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEUROIMMUNE DISORDERS.

Financials

YearRevenueExpensesAssets
2023$1.3M$0$1.7M

Compensation

Gabrielle deFiebre
Director of Research and Programs
key employee
$0
$0
$0
$109,102
Chitra Krishnan
Executive Director
chief executive officer
$0
$0
$0
$102,113
Sanford J Siegel
President
chief executive officer
$0
$0
$0
$0
Deborah Capen
Secretary
officer (unspecified)
$0
$0
$0
$0
Linda Malecky
Treasurer, Vice President
vice president
$0
$0
$0
$0
Bruce L Downey
Director
board member
$0
$0
$0
$0
Benjamin M Greenberg MD
Director
board member
$0
$0
$0
$0
Douglas A Kerr MD PHD
Director
board member
$0
$0
$0
$0
Carlos A Pardo-Villamizar MD
Director
board member
$0
$0
$0
$0
Barbara Sattler
Director
board member
$0
$0
$0
$0
Jason Robbins
Director
board member
$0
$0
$0
$0
Peter C Johnson
Director
board member
$0
$0
$0
$0
Dennis Wolfe
Director
board member
$0
$0
$0
$0
James T Lubin
Executive Committee Member
officer (unspecified)
$0
$0
$0
$0
Dave Evans
Director
board member
$0
$0
$0
$0
Michael Levy
Director
board member
$0
$0
$0
$0
Lana Harder
Director
board member
$0
$0
$0
$0

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