THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Health Care organizations in Pennsylvania.
| Position | Total |
|---|---|
Executive Director, Secret Median to 75th percentile | $123k $133k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 4 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at C & S PATIENT EDUCATION FOUNDATION equaled 38% of the organization's total expenses. The median for health care organizations is 4%.
Based on 13,830 health care organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 14%
from 2023
From $109k in 2023 to $123k in 2024.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 14% from 2023 to 2024, while revenue rose 7%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about C & S PATIENT EDUCATION FOUNDATION
What does the Chief Executive Officer of C & S PATIENT EDUCATION FOUNDATION earn?
In 2024, the Chief Executive Officer of C & S PATIENT EDUCATION FOUNDATION received $123,466 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Health Care organizations in Pennsylvania, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at C & S PATIENT EDUCATION FOUNDATION compare with similar nonprofits?
Compared with the same role at Health Care organizations in Pennsylvania, the 2024 pay of the Chief Executive Officer at C & S PATIENT EDUCATION FOUNDATION falls between the median and the 75th percentile. In 2024, the highest total compensation at C & S PATIENT EDUCATION FOUNDATION equaled 38% of the organization's total expenses. The median for health care organizations is 4%.
What are C & S PATIENT EDUCATION FOUNDATION's revenue and expenses?
In 2024, C & S PATIENT EDUCATION FOUNDATION reported $427k in total revenue and $328k in total expenses on its IRS Form 990.
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