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EVERYLIFE FOUNDATION FOR RARE DISEASES

EIN: 26-4614274Washington, DCZIP: 20005
G012 - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

INFORMATION REGARDING THE FOUNDATION'S PROGRAMS CAN BE OBTAINED AT WWW.EVERYLIFEFOUNDATION.ORG.

Financials

YearRevenueExpensesAssets
2024$7M$0$6.2M
2023$6.8M$0$5.8M

Compensation

2024

Anne Kennedy
Policy & Advocacy
unclassified
$259,793
$0
$0
$279,667
Michael Pearlmutter
CEO
chief executive officer
$201,335
$0
$0
$210,295
Megan Pinegar
COO
chief operating officer
$192,408
$0
$0
$204,883
Jamie Sullivan
Sr. Dir of Policy
unclassified
$151,230
$0
$0
$164,390
Edward Brasfield
Sr Dir of Develop
unclassified
$0
$0
$0
$141,676
Shannon Von Felden
Sr Director of Adv
unclassified
$0
$0
$0
$141,600
Vicky Seyfert-Margolis
Chair
board chair
$0
$0
$0
$0
Frank Sasinowski
Vice Chair
board vice chair
$0
$0
$0
$0
Stephen Groft
Treasurer
officer (unspecified)
$0
$0
$0
$0
Jennifer Bernstein
Secretary
officer (unspecified)
$0
$0
$0
$0
Amrit Ray - until 224
Director
board member
$0
$0
$0
$0
Ritu Baral
Director
board member
$0
$0
$0
$0
Shandra Trantham
Director
board member
$0
$0
$0
$0
Abbey Hauser
Director
board member
$0
$0
$0
$0
Lisa Carlton
Director
board member
$0
$0
$0
$0
Cristina Casanova Might - until 122
Director
board member
$0
$0
$0
$0
Merrill Friedman
Director
board member
$0
$0
$0
$0

2023

Julia Jenkins
President & Executive Dir.
chief executive officer
$273,948
$0
$0
$296,175
Anne Kennedy
Policy & Advocacy
unclassified
$250,269
$0
$0
$269,223
Megan Pinegar
COO
chief operating officer
$153,654
$0
$0
$167,938
Jamie Sullivan
Sr. Dir of Policy
unclassified
$0
$0
$0
$146,907
Shannon Von Felden
Sr Director of Adv
unclassified
$0
$0
$0
$130,375
Edward Brasfield
Sr Dir of Develop
unclassified
$0
$0
$0
$129,089
Emil Kakkis - until 423
Director
board member
$0
$0
$0
$0
Abbey Hauser
Director
board member
$0
$0
$0
$0
Lisa Carlton
Director
board member
$0
$0
$0
$0
Cristina Casanova Might
Director
board member
$0
$0
$0
$0
Merrill Friedman
Director
board member
$0
$0
$0
$0
Vicky Seyfert-Margolis
Vice Chair
board vice chair
$0
$0
$0
$0
Frank Sasinowski
Chair
board chair
$0
$0
$0
$0
Stephen Groft
Treasurer
officer (unspecified)
$0
$0
$0
$0
Jennifer Bernstein
Secretary
officer (unspecified)
$0
$0
$0
$0
Amrit Ray
Director
board member
$0
$0
$0
$0
Ritu Baral - until 723
Director
board member
$0
$0
$0
$0

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