GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 8 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $319k
- Bonus
- —
- Other
- —
- Benefits
- $836
- Base
- $254k
- Bonus
- —
- Other
- —
- Benefits
- $86
- Base
- $179k
- Bonus
- —
- Other
- —
- Benefits
- $6k
- Base
- $180k
- Bonus
- —
- Other
- —
- Benefits
- $86
- Base
- $169k
- Bonus
- —
- Other
- —
- Benefits
- $86
- Base
- $146k
- Bonus
- —
- Other
- —
- Benefits
- $6k
- Base
- $152k
- Bonus
- —
- Other
- —
- Benefits
- $86
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
CEO 75th to 90th percentile | $319k | — | — | $836 | $320k $340k |
Founder & Chief Mission Officer Officer (Unspecified) | $254k | — | — | $86 | $254k $270k |
Senior Director, Scientific Programs Highest Compensated Employee Median to 75th percentile | $179k | — | — | $6k | $186k $197k |
Senior Director, Rare-x Research Program Director (Operational) 75th to 90th percentile | $180k | — | — | $86 | $180k $191k |
Senior Director, Marketing Director (Operational) 75th to 90th percentile | $169k | — | — | $86 | $169k $179k |
Director, Program Operations 25th percentile to median | $146k | — | — | $6k | $152k $162k |
Senior Director, IT (term 12/24) Chief Information Officer 25th percentile to median | $152k | — | — | $86 | $152k $161k |
Senior Director, Finance Median to 75th percentile | — | — | — | — | $137k $145k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 18 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at GLOBAL GENES equaled 4% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Held steady
from 2023
From $323k in 2023 to $320k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 1% from 2023 to 2024, while revenue fell 16%.
- Highest Compensated Employee pay rose 10% from 2023 to 2024.
- Director (Operational) pay rose 9% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about GLOBAL GENES
What does the Chief Executive Officer of GLOBAL GENES earn?
In 2024, the Chief Executive Officer of GLOBAL GENES received $319,961 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations nationwide, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at GLOBAL GENES compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Chief Executive Officer at GLOBAL GENES falls between the 75th and 90th percentiles. In 2024, the highest total compensation at GLOBAL GENES equaled 4% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are GLOBAL GENES's revenue and expenses?
In 2024, GLOBAL GENES reported $7.1M in total revenue and $7.4M in total expenses on its IRS Form 990.
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