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GLOBAL GENES

EIN: 26-3331487Washington, DCZIP: 20005
G12 - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.

Financials

YearRevenueExpensesAssets
2023$8.5M$0$2.1M

Compensation

CHARLENE RIGBY
CEO
chief executive officer
$322,542
$0
$0
$322,617
NICOLE R BOICE
Founder & Chief Mission Officer
officer (unspecified)
$257,792
$0
$0
$257,864
TIMOTHY R EHRHARD
Senior Director, IT
chief information officer
$170,000
$0
$0
$170,078
KARMEN TRZUPEK
Senior Director, Scientific Programs
highest compensated employee
$162,097
$0
$0
$168,475
LAUREN ALFORD
Senior Director, Marketing Communication
director (operational)
$165,000
$0
$0
$165,078
MARIA DELLA ROCCA
Senior Director, Support & Education
former officer/director/trustee
$160,779
$0
$0
$160,851
VANESSA VOGEL-FARLEY
Senior Director, Research Data Analytics & Governa
former officer/director/trustee
$160,000
$0
$0
$160,072
VICTORIA WEISS
Senior Director, Finance
chief financial officer
$0
$0
$0
$124,450
KATHERINE MAYNARD
Vice Chair
board vice chair
$0
$0
$0
$0
WALT KOWTONIUK
Chair
board chair
$0
$0
$0
$0
RAM IYER
Director
board member
$0
$0
$0
$0
BETSY BOGARD
Director
board member
$0
$0
$0
$0
INDU NAVAR
Director
board member
$0
$0
$0
$0
CAROLINE LOEWY
Director
board member
$0
$0
$0
$0
HUGH HEMPEL
Director
board member
$0
$0
$0
$0
JOHN REYNDERS
Director
board member
$0
$0
$0
$0
ALVIN SHIH
Director
board member
$0
$0
$0
$0
PETER GOODHAND
Director
board member
$0
$0
$0
$0
SIMON FROST
CFO
chief financial officer
$0
$0
$0
$0
CHRISTINA HARTMAN
Secretary
officer (unspecified)
$0
$0
$0
$0
ILANA FOGELMAN
Director
board member
$0
$0
$0
$0
KHRYSTAL DAVIS
Director
board member
$0
$0
$0
$0
DAVID PEARCE
Director
board member
$0
$0
$0
$0
MORRIE RUFFIN
Director
board member
$0
$0
$0
$0
NEIL KUMAR
Director
board member
$0
$0
$0
$0

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