TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 6 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $144k
- Bonus
- —
- Other
- —
- Benefits
- $56k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Dir. of Research Programs Highest Compensated Employee Median to 75th percentile | $144k | — | — | $56k | $200k $216k |
Dir. of Administration Highest Compensated Employee 25th percentile to median | — | — | — | — | $146k $158k |
CEO 25th percentile to medianvs Medical Research peers in New York | — | — | — | — | $110k $119k |
Dir. of Development Highest Compensated Employee Below 10th percentile | — | — | — | — | $109k $117k |
CFO 10th to 25th percentile | — | — | — | — | $43k $46k |
Chair Board Chair 10th to 25th percentile | — | — | — | — | $12k $13k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 17 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at HEREDITARY DISEASE FOUNDATION equaled 4% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Climbed 82%
over 3 years
From $110k in 2021 to $200k in 2024.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Highest Compensated Employee pay rose 20% from 2023 to 2024, while revenue rose 206%.
- Chief Executive Officer pay held roughly steady from 2021 to 2024.
- Chief Financial Officer pay rose 455% from 2021 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about HEREDITARY DISEASE FOUNDATION
What does the Highest Compensated Employee of HEREDITARY DISEASE FOUNDATION earn?
In 2024, the Highest Compensated Employee of HEREDITARY DISEASE FOUNDATION received $199,846 in total compensation. This pay is above the median (the midpoint) for Highest Compensated Employee roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Highest Compensated Employee pay at HEREDITARY DISEASE FOUNDATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Highest Compensated Employee at HEREDITARY DISEASE FOUNDATION falls between the median and the 75th percentile. In 2024, the highest total compensation at HEREDITARY DISEASE FOUNDATION equaled 4% of the organization's total expenses. The median for medical research organizations is 10%.
What are HEREDITARY DISEASE FOUNDATION's revenue and expenses?
In 2024, HEREDITARY DISEASE FOUNDATION reported $7.9M in total revenue and $4.5M in total expenses on its IRS Form 990.
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