PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 7 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $299k
- Bonus
- —
- Other
- $396
- Benefits
- $18k
- Base
- $239k
- Bonus
- —
- Other
- $60
- Benefits
- $23k
- Base
- $216k
- Bonus
- —
- Other
- $60
- Benefits
- $9k
- Base
- $183k
- Bonus
- —
- Other
- $229
- Benefits
- $20k
- Base
- $163k
- Bonus
- —
- Other
- $396
- Benefits
- $19k
- Base
- $162k
- Bonus
- —
- Other
- $138
- Benefits
- $336
- Base
- $160k
- Bonus
- —
- Other
- $86
- Benefits
- $321
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Executive Officer 75th to 90th percentile | $299k | — | $396 | $18k | $327k $364k |
Chief Operating Officer Median to 75th percentile | $239k | — | $60 | $23k | $270k $301k |
Sr. Director of Scientific Initiatives Highest Compensated Employee Median to 75th percentile | $216k | — | $60 | $9k | $231k $258k |
Director of Finance (thru 9/24) Median to 75th percentile | $183k | — | $229 | $20k | $208k $232k |
Sr. Director of Programs Highest Compensated Employee 25th percentile to median | $163k | — | $396 | $19k | $187k $209k |
Director of IT Chief Information Officer 25th percentile to medianvs all sectors nationwide | $162k | — | $138 | $336 | $168k $187k |
Dir of Dev & Comm (thru 1/24) Highest Compensated Employee 25th percentile to median | $160k | — | $86 | $321 | $165k $184k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 20 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION equaled 3% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
What does the Chief Executive Officer of THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION earn?
In 2023, the Chief Executive Officer of THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION received $326,881 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Medical Research organizations nationwide, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2023 pay of the Chief Executive Officer at THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION falls between the 75th and 90th percentiles. In 2023, the highest total compensation at THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION equaled 3% of the organization's total expenses. The median for medical research organizations is 10%.
What are THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION's revenue and expenses?
In 2023, THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION reported $13.1M in total revenue and $11.5M in total expenses on its IRS Form 990.
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