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DYSTROPHIC EPIDERMOLYSIS BULLOSA

EIN: 11-2519726Boulder, COZIP: 80302
501(c)(3)

Misión

DEBRA IS DEDICATED TO FINDING A CURE FOR EBIDERMOLYSIS BULLOSA " EB" WHICH EFFECTS 1 OUT OF EVERY 50,000 LIVE BIRTHS IN THE UNITED STATES TODAY. EB IS A GENETICALLY BASED DISEASE CHARACTERIZED BY CHRONIC, PAINFULL BLISTERING. THE SKIN AND MUCOUS MEMBRANES ARE SO FRAGILE THAT THE SLIGHTEST TOUCH CAN CAUSE SEVERE BLISTERING INSIDE AND OUTSIDE THE BODY. PRESENT AT BIRTH, EB EFFECTS MEN AND WOMEN OF ALL RACES AND ETHNIC GROUPS, AND SOMETIMES, WHEN THERE IS NO FAMILY HISTORY. IT OCCURS AS THE RESULT OF A SPONTANEOUS GENETIC MUTATION. TODAY, THERE IS NO CURE OR TREATMENT FOR EB, EXCEPT DAILY WOUND CARE AND BANDAGING. GENETIC RESEARCH IS MAKING PROGRESS TOWARDS TREATMENTS AND A CURE.

Finanzas

AñoIngresosGastosActivos
2023$2.6M$0$1.9M

Compensación

BRETT KOPELAN
Executive Director
chief executive officer
$283,417
$0
$0
$283,417
RICHARD GALLAGHER
Chair Emeritus
board chair
$0
$0
$0
$0
J ALEC ALEXANDER
Treasurer
officer (unspecified)
$0
$0
$0
$0
JOHN LEE
Secretary
officer (unspecified)
$0
$0
$0
$0
ANGELA CHRISTIANO PhD
Director
board member
$0
$0
$0
$0
RYAN FULLMER
Director
board member
$0
$0
$0
$0
JAMES WETRICH
Director
board member
$0
$0
$0
$0
LESLIE RADER
Director
board member
$0
$0
$0
$0
ROB RAYL
Director
board member
$0
$0
$0
$0
WILLIAM CORNMAN
Director
board member
$0
$0
$0
$0
THOMAS TRIMARCHI
Director
board member
$0
$0
$0
$0
ANDREW TAVANI
Chair
board chair
$0
$0
$0
$0
ROBERT RYAN Ph D
Director
board member
$0
$0
$0
$0

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Aprende más

Datos de declaraciones del Formulario 990 del IRS (2023).