INTERNATIONAL SOCIETY FOR MANNOSIDO

Misión

THE INTERNATIONAL SOCIETY OF MANNOSIDOSIS AND RELATED DISEASES IS AN INTERNATIONALLY FOCUSED ORGANIZATION WHOSE MISSION IS TO ADVOCATE FOR FAMILIES AFFECTED BY ONE OF THE GLYCOPROTEIN STORAGE DISEASES:ALPHA MANNOSIDOSIS, ASPARTYLGLUCOSAMINURIA, BETA-MANNOSIDOSIS, FUCOSIDOSIS, GALACTOSIALIDOSIS,MUCOLIPIDOSIS II (I-CELL DISEASE), MUCOLIPIDOSIS III (PSEUDO-HURIER POLYDYSTROPHY), SCHINDLER DISEASE AND SIALIDOSIS. THESE DISEASES ARE THE ULTRA-ORPHANS OF THE LYSOSOMAL STORAGE DISEASE FAMILY, WHICH ENCOMPASS OVER 40 SIMILAR DISORDERS, AND CURRENTLY HAVE FEW TREATMENTS BEYOND SYMPTOMATIC CARE.ISMRD'S ADVOCACY EFFORTS ARE NOT LIMITED BY BORDERS, LANGUAGE, RACE OR RELIGION.

Finanzas

Compensación

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