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STXBP1 FOUNDATION

EIN: 82-1439459Holly Springs, NCZIP: 27540
G20 - Diseases, Disorders & Medical Disciplines501(c)(3)

Misión

TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.

Finanzas

AñoIngresosGastosActivos
2024$1.4M$0$1.5M
2023$736k$0$1.4M

Compensación

2024

JARED BARNUM
Director, Technology
officer (unspecified)
$0
$0
$0
$0
JACQUELINE STEINBERG
Vice President & Scientifi
vice president
$0
$0
$0
$0
CHARLENE SON RIGBY
President
chief executive officer
$0
$0
$0
$0
MELISSA HIOCO
Director, Community Engagement
officer (unspecified)
$0
$0
$0
$0
HEATHER JONES
Treasurer
officer (unspecified)
$0
$0
$0
$0
RUSS NOVY
Director, Marketing & Brand
director (operational)
$0
$0
$0
$0
CRISTINA BRENNAN
Secretary
officer (unspecified)
$0
$0
$0
$0
DANIELE GREINER
Director, Development
chief development officer
$0
$0
$0
$0

2023

MELISSA HIOCO
Director, Development
chief development officer
$0
$0
$0
$0
JENNIFER CLATTERBUCK
Director, Community Engage
officer (unspecified)
$0
$0
$0
$0
RUSS NOVY
Director, Marketing & Bran
director (operational)
$0
$0
$0
$0
DANIELE GREINER
Director, Development
chief development officer
$0
$0
$0
$0
JARED BARNUM
Director, Technology
officer (unspecified)
$0
$0
$0
$0
CHARLENE SON RIGBY
President
chief executive officer
$0
$0
$0
$0
HEATHER JONES
Treasurer
officer (unspecified)
$0
$0
$0
$0
JACQUELINE STEINBERG
Vice President & Scientifi
vice president
$0
$0
$0
$0
CRISTINA BRENNAN
Secretary
officer (unspecified)
$0
$0
$0
$0

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