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UNITED PORPHYRIAS ASSOCIATION INC

EIN: 87-4143089Bethesda, MDZIP: 20814
G80 - Diseases, Disorders & Medical Disciplines501(c)(3)

Misión

The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.

Finanzas

AñoIngresosGastosActivos
2022$624k$0$531k

Compensación

ROBERT J DESNICK PHD MD
Director
board member
$0
$0
$0
$0
KRISTEN WHEEDEN
President
chief executive officer
$0
$0
$0
$0
HON JOSEPH CROWLEY
Director
board member
$0
$0
$0
$0
ANDREW L TURELL
Chairman
board chair
$0
$0
$0
$0
HETANSHI NAIK PHD MS CGC
Secretary
officer (unspecified)
$0
$0
$0
$0
SHAWN WILLIS
Treasurer
officer (unspecified)
$0
$0
$0
$0

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Datos de declaraciones del Formulario 990 del IRS (2022).