THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 5 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Human Services organizations nationwide.
- Base
- $342k
- Bonus
- $28k
- Other
- —
- Benefits
- $32
- Base
- $271k
- Bonus
- $22k
- Other
- —
- Benefits
- $129
- Base
- $162k
- Bonus
- $13k
- Other
- —
- Benefits
- $25k
- Base
- $195k
- Bonus
- —
- Other
- —
- Benefits
- $3k
- Base
- $164k
- Bonus
- $13k
- Other
- —
- Benefits
- $8k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President and CEO Above 90th percentilevs Human Services peers in District of Columbia | $342k | $28k | — | $32 | $384k $408k |
Chief Business Officer Highest Compensated Employee Above 90th percentilevs Human Services peers in District of Columbia | $271k | $22k | — | $129 | $303k $321k |
Vice President, Clinical Care & Education Board Vice President 75th to 90th percentile | $162k | $13k | — | $25k | $208k $221k |
Chief Program Officer 75th to 90th percentile | $195k | — | — | $3k | $207k $220k |
Vice President, Community Research & Genetic Serv. Board Vice President Median to 75th percentile | $164k | $13k | — | $8k | $193k $205k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 16 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC equaled 3% of the organization's total expenses. The median for human services organizations is 8%.
Based on 26,698 human services organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Held steady
from 2023
From $387k in 2023 to $384k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 1% from 2023 to 2024, while revenue rose 3%.
- Highest Compensated Employee pay rose 13% from 2023 to 2024.
- Board Vice President pay rose 7% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
What does the Chief Executive Officer of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC earn?
In 2024, the Chief Executive Officer of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC received $383,769 in total compensation. This pay is in the top 10% for Chief Executive Officer roles among Human Services organizations in District of Columbia: at least 9 in 10 comparable filings report less. Based on IRS Form 990 data.
How does Chief Executive Officer pay at THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC compare with similar nonprofits?
Compared with the same role at Human Services organizations in District of Columbia, the 2024 pay of the Chief Executive Officer at THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC falls in the top 10%. In 2024, the highest total compensation at THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC equaled 3% of the organization's total expenses. The median for human services organizations is 8%.
What are THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's revenue and expenses?
In 2024, THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC reported $14.3M in total revenue and $12.9M in total expenses on its IRS Form 990.
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