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NATIONAL ORGANIZATION FOR RARE

EIN: 13-3223946Quincy, MAZIP: 02169
501(c)(3)

Misión

NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.

Finanzas

AñoIngresosGastosActivos
2024$50.7M$0$72.3M
2023$66.4M$0$65.2M

Compensación

2024

PAMELA GAVIN
EVP (until 5/24)/ceo (as of 5/24)
executive vice president
$416,759
$25,000
$0
$475,492
PETER SALTONSTALL
CEO (until 5/24)/ceo Emeritus (as of 5/24)
chief executive officer
$349,441
$25,000
$0
$398,956
EDWARD NEILAN
Chief Medical & Scientific Officer
highest compensated employee
$270,662
$0
$0
$332,277
PRASHANT GOEL
VP Information Technology
vice president
$283,442
$0
$0
$298,064
PATRICK COLLINS
VP Community & Corporate Affairs
vice president
$207,141
$0
$0
$265,586
ALEXANDRA MOORE
VP of Development
vice president
$225,775
$20,000
$0
$258,059
NEETA KOTECHA
VP & CFO
chief financial officer
$179,637
$0
$0
$221,966
JILL POLLANDER
VP Patient Services
vice president
$182,382
$0
$0
$208,148
KELLEEN ESPERIAS
Chief Strategy & Operations Officer
officer (unspecified)
$0
$0
$0
$77,435
KATHLEEN HOLCOMBE
Chair
board chair
$0
$0
$0
$0
SHELDON SCHUSTER PHD
Vice Chair
board vice chair
$0
$0
$0
$0
LEON EIDELMAN
Treasurer (until 12/24)
officer (unspecified)
$0
$0
$0
$0
JIM PALMA
Secretary
officer (unspecified)
$0
$0
$0
$0
DENNIS JACKMAN
Director
board member
$0
$0
$0
$0
MARK SKINNER
Director
board member
$0
$0
$0
$0
SUSAN BERRY MD
Director
board member
$0
$0
$0
$0
SHAFALI JESTE MD
Director
board member
$0
$0
$0
$0
PHILLIP PEARL MD
Director
board member
$0
$0
$0
$0
MIKE PORATH
Director
board member
$0
$0
$0
$0
TOM KELLY
Director
board member
$0
$0
$0
$0
LORNA WEIR
Director
board member
$0
$0
$0
$0

2023

PETER SALTONSTALL
President/CEO
chief executive officer
$481,804
$15,000
$0
$523,208
PAMELA GAVIN
Executive Vice President
executive vice president
$365,823
$25,000
$0
$422,733
EDWARD NEILAN
Chief Medical & Scientific Officer
highest compensated employee
$270,662
$0
$0
$329,637
PRASHANT GOEL
Vp Information Technology
vice president
$275,167
$7,500
$0
$297,198
ALEXA MOORE
Vp of Development
vice president
$215,028
$20,000
$0
$246,775
LISA SARFATY
Vp Community Engagement
vice president
$170,927
$2,500
$0
$227,907
NEETA KOTECHA
Vp Finance
vice president
$174,602
$2,500
$0
$215,677
JILL POLLANDER
Vp Patient Services
vice president
$176,975
$2,500
$0
$203,447
STEVEN GROSSMAN
Director (Until 1/31/23)
board member
$0
$0
$0
$0
MIKE PORATH
Director
board member
$0
$0
$0
$0
PHILLIP PEARL MD
Director
board member
$0
$0
$0
$0
SHAFALI JESTE MD
Director
board member
$0
$0
$0
$0
SUSAN BERRY MD
Director
board member
$0
$0
$0
$0
MARK SKINNER
Director
board member
$0
$0
$0
$0
JIM PALMA
Secretary
officer (unspecified)
$0
$0
$0
$0
TOM KELLY
Director (As of 5/4/23)
board member
$0
$0
$0
$0
LEON EIDELMAN
Treasurer
officer (unspecified)
$0
$0
$0
$0
DENNIS JACKMAN
Vice Chair
board vice chair
$0
$0
$0
$0
KATHLEEN HOLCOMBE
Chair
board chair
$0
$0
$0
$0
LORNA WEIR
Director (As of 5/4/23)
board member
$0
$0
$0
$0
SHELDON SCHUSTER PHD
Director (As of 5/4/23)
board member
$0
$0
$0
$0

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Aprende más

Datos de declaraciones del Formulario 990 del IRS (2023-2024).